aseel privacy Policy - Last updated 01/10/2025

Aseel empowers you as a parent in childhood cancer with access to relevant information, connection with others, and simple tools to track the care journey. Any data you choose to share helps you and your family better navigate the care journey. With your permission, your data may also support insights and research that can improve care for other families. Aseel is committed to protecting your personal data and respecting your privacy. This Privacy Policy explains what we collect, how we use, disclose, and protect your personal data when you use our app.

Important note: Aseel is not a medical tool and does not provide medical advice. All health-related decisions remain the sole responsibility of the parent. Aseel cannot be held liable for any medical outcomes, diagnoses, or treatments related to your child’s care. Always consult qualified healthcare professionals for medical advice.

We are the team behind Aseel, a digital platform designed to support parents caring for children with cancer. Aseel helps you:

• Track and reflect on your child’s care journey
• Learn from other families facing similar challenges
• Contribute to research that aims to improve outcomes in childhood cancer
• Access trustworthy information about children’s cancer, tailored to your interests

Aseel is currently operated as an independent initiative. You can contact us at:
aseel.apr25@gmail.com

We collect and process personal data you provide about your child, including:

• Identification data: Name, age, email address, mobile phone number, and gender
• Location data: hospital or clinic of treatment
• Health data: Diagnosis and treatment information
• Health data: Medication and outcome history
• Health data: Mood and energy levels
• Other data: Notes, reflections, or updates you voluntarily enter

We also collect your contact details and usage information to operate the app.

We collect this data to:

• Help you track and understand your child’s care over time
• Enable meaningful community support and learning among parents
• Generate insights that support research and innovation in childhood cancer care
• Improve the app and communicate with you when needed

We use this data to:

* Deliver personalized app services

* Track and manage your child’s treatments

* Ensure app functionality and security

* Comply with regulatory requirements

We do not use your personal data for automated decision-making that produces legal or similarly significant effects.

We may share this data with:

* Authorized healthcare professionals (with your consent)

* Data processors (e.g., cloud service providers) under strict contractual obligations

* Regulatory bodies, if legally required

We do not sell your personal data to advertisers.

We process your child’s data based on your explicit consent as their parent or legal guardian (Article 6(1)(a) and Article 9(2)(a) GDPR).

You may withdraw your consent at any time by emailing us at aseel.apr25@gmail.com.

• Only authorized members of the Aseel team
• No third-party services are used at this time
• We do not sell or share data with advertisers

If we work with trusted partners in the future, we will notify you and sign GDPR-compliant agreements.

• Your data is stored securely in the Frankfurt data center of our hosting provider, DigitalOcean, under a GDPR-compliant Data Processing Agreement.

We retain your data only as long as necessary for the purposes described or as required by law. After this period, data is securely deleted or anonymized. You can contact us to request an earlier deletion.

| Data Type            | Retention Period                                |

| -------------------- | ----------------------------------------------- |

| Health data          | Until account deletion or 5 years of inactivity |

| Identification data         | Until account deletion                          |

| Legal/technical logs | Up to 6 years                                   |

• Access the data we hold about your child
• Correct any inaccurate data
• Request deletion at any time (“right to be forgotten”)
• Request a copy of the data in portable format
• Withdraw consent at any time without affecting earlier processing

To exercise these rights, contact us at aseel.apr25@gmail.com. We aim to respond within 2 weeks.

• We implement appropriate technical and organizational measures to protect your personal data, including encryption, secure data storage, and role-based access control.